The Australian Longitudinal Study on Women's Health: 1973-78 cohort Core Data Release, Survey 6 data, 2012

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Commonwealth Government Department of Health and Ageing; Dobson, Annette; Brown, Wendy; Byles, Julie; Lee, Christina; Lucke, Jayne; Tooth, Leigh; Loxton, Deborah; Sibbritt, David; Pachana, Nancy; Mishra, Gita; McLaughlin, Deirdre, 2020, "The Australian Longitudinal Study on Women's Health: 1973-78 cohort Core Data Release, Survey 6 data, 2012", https://doi.org/10.26193/GOFLFC, ADA Dataverse, V1

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Description	The Australian Longitudinal Study on Women's Health (ALSWH) is a longitudinal population-based survey, first funded in 1995, which examines the health of over 57,000 Australian women. The project was designed to explore factors that influence health among women who are broadly representative of the entire Australian population. ALSWH goes beyond a narrow perspective that equates women's health with reproductive and sexual health, and takes a comprehensive view of all aspects of health throughout women's lifespan. The first survey was conducted in 1996, and covered three groups, the 1973-1978 cohort, the 1946-1951 cohort, and the 1921-1926 cohort. In 2013, a new cohort of young women, aged 18-23 and known as the 1989-95 cohort, were recruited. Each cohort receives different questionnaires, which vary in the types of questions asked, but in essence cover issues regarding overall physical and emotional health, use of health services, education and employment status, drug and/or alcohol use, diet, exercise, and family situation. A detailed description of the background, aims, themes, methods and progress of the study is given on the project web page https://www.alswh.org.au/about/. This particular dataset refers to Survey 6 of the 1973-78 cohort and is a part of the Core Data Release. Some data in this data release were modified to maintain the confidentiality of ALSWH respondents.
Subject	Medicine, Health and Life Sciences; Social Sciences
Keyword	Abuse, Ageing, Alcohol, Caring, Health service use, Intergenerational issues, Medications, Mental health, Nutrition, Physical activity, Reproductive health, Roles and relationships, Rural and remote areas, Social factors in health and wellbeing, Tobacco, Weight, Women's health
Related Publication	Study Outcomes
Notes	The dataset is owned by the Commonwealth of Australia.
License/Data Use Agreement	Custom Dataset Terms

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	1.ALSWH_1973-78_S6_2012_databook.zip QMSAJD/ZIP Archive - 79.2 KB Published Aug 31, 2020 22 Downloads MD5: dc77f3f65d9de63254d8e1150f1a849f 1973-78 Cohort Survey 6 Data Book Data BookDocumentationSurvey 6	Access File File Access Restricted Request Access Download Metadata Data File Citation EndNote XML RIS BibTeX
	2.ALSWH_1973-78_S6_2012_CSV.zip QMSAJD/ZIP Archive - 1.1 MB Published Aug 31, 2020 17 Downloads MD5: b0c99360421859bf8c7cceba07ba4daa Data Format: Comma Separated (.csv) CSVDataSurvey 6	Access File File Access Restricted Request Access Download Metadata Data File Citation EndNote XML RIS BibTeX
	2.ALSWH_1973-78_S6_2012_SAS.zip QMSAJD/ZIP Archive - 1.7 MB Published Aug 31, 2020 6 Downloads MD5: 109e9b49ebb86547c0a2378f76372a71 Data Format: SAS data and formats (.sas7bdat, .sas) DataSASSurvey 6	Access File File Access Restricted Request Access Download Metadata Data File Citation EndNote XML RIS BibTeX
	2.ALSWH_1973-78_S6_2012_SPSS.zip QMSAJD/ZIP Archive - 1.0 MB Published Aug 31, 2020 15 Downloads MD5: 4ca92f43cf2d24e938d03d452c1f2fdc Data Format: SPSS (.sav) DataSPSSSurvey 6	Access File File Access Restricted Request Access Download Metadata Data File Citation EndNote XML RIS BibTeX
	2.ALSWH_1973-78_S6_2012_Stata.zip QMSAJD/ZIP Archive - 1.7 MB Published Aug 31, 2020 20 Downloads MD5: d01157e2fba3e802b64437def9d71684 Data Format: Stata (.dta) DataStataSurvey 6	Access File File Access Restricted Request Access Download Metadata Data File Citation EndNote XML RIS BibTeX

Citation Metadata

Persistent Identifier	doi:10.26193/GOFLFC
Publication Date	2020-08-31
Title	The Australian Longitudinal Study on Women's Health: 1973-78 cohort Core Data Release, Survey 6 data, 2012
Alternative Title	ALSWH 1973-78 cohort, Survey 6 Core Data Release
Alternative URL	https://www.alswh.org.au/
Other Identifier	Australian Data Archive: 01017-yng6core
Author	Commonwealth Government Department of Health and Ageing Dobson, Annette (University of Queensland) - ORCID: 0000-0003-4956-0124 Brown, Wendy (University of Queensland) - ORCID: 0000-0001-9093-4509 Byles, Julie (University of Newcastle) - ORCID: 0000-0002-3984-0124 Lee, Christina (University of Queensland) - ORCID: 0000-0003-3138-9867 Lucke, Jayne (University of Queensland) 0000-0002-2885-5292 Tooth, Leigh (University of Queensland) 0000-0002-1569-934X Loxton, Deborah (University of Newcastle) - ORCID: 0000-0002-4745-8612 Sibbritt, David (University of Newcastle) - ORCID: 0000-0003-3561-9447 Pachana, Nancy (University of Queensland) - ORCID: 0000-0002-8927-4205 Mishra, Gita (University of Queensland) - ORCID: 0000-0001-9610-5904 McLaughlin, Deirdre (University of Queensland)
Point of Contact	Use email button above to contact. Australian Data Archive (Australian National University)
Description	The Australian Longitudinal Study on Women's Health (ALSWH) is a longitudinal population-based survey, first funded in 1995, which examines the health of over 57,000 Australian women. The project was designed to explore factors that influence health among women who are broadly representative of the entire Australian population. ALSWH goes beyond a narrow perspective that equates women's health with reproductive and sexual health, and takes a comprehensive view of all aspects of health throughout women's lifespan. The first survey was conducted in 1996, and covered three groups, the 1973-1978 cohort, the 1946-1951 cohort, and the 1921-1926 cohort. In 2013, a new cohort of young women, aged 18-23 and known as the 1989-95 cohort, were recruited. Each cohort receives different questionnaires, which vary in the types of questions asked, but in essence cover issues regarding overall physical and emotional health, use of health services, education and employment status, drug and/or alcohol use, diet, exercise, and family situation. A detailed description of the background, aims, themes, methods and progress of the study is given on the project web page https://www.alswh.org.au/about/. This particular dataset refers to Survey 6 of the 1973-78 cohort and is a part of the Core Data Release. Some data in this data release were modified to maintain the confidentiality of ALSWH respondents.
Subject	Medicine, Health and Life Sciences; Social Sciences
Keyword	Abuse Ageing Alcohol Caring Health service use Intergenerational issues Medications Mental health Nutrition Physical activity Reproductive health Roles and relationships Rural and remote areas Social factors in health and wellbeing Tobacco Weight Women's health
Related Publication	Study Outcomes http://alswh.org.au/publications-and-reports/published-papers
Notes	The dataset is owned by the Commonwealth of Australia.
Language	English
Producer	The University of Queensland (UQ) https://www.uq.edu.au/ The University of Newcastle https://www.newcastle.edu.au/
Production Date	2019-11-01
Production Location	Brisbane, Queensland
Contributor	Data Collector : University of Newcastle Funder : Australian Government Department of Health
Distributor	Australian Data Archive (The Australian National University) (ADA) http://www.ada.edu.au/
Depositor	David Fitzgerald (ALSWH Data Manager)
Deposit Date	2020-02-01
Time Period	Start Date: 2010-01-01 ; End Date: 2013-11-30
Date of Collection	Start Date: 2012-04-26 ; End Date: 2013-11-30
Data Type	Survey data
Series	The Australian Longitudinal Study on Women’s Health (ALSWH) is a longitudinal study of over 57,000 women, and is funded by the Australian Government Department of Health. Three cohorts who were aged 18-23, 45-50 and 70-75 were recruited in 1996, and a fourth cohort, aged 18-23, were recruited in 2012/2013. The ALSWH examines demographic, social, physical, psychological, and behavioural variables and their effect on major aspects of women’s health and well-being and health service use. The surveys cover major diagnosed diseases, symptoms, health behaviours, use of health services and medications, and a range of factors relating to psychological well-being, social roles, and life events. Since its inception ALSWH has provided invaluable data about the health of women across the lifespan, and informed federal and state government policies across a wide range of issues.
Software	SPSS, Version: 24.0 Stata, Version: 12.0 SAS, Version: 9.4
Related Material	Information for Data Users; Technical Reports; 1973-78 cohort Survey 6 (34-39 years) Questionnaire; Data Dictionary - https://www.alswh.org.au/for-researchers/data/data-dictionary; ALSWH Core Datasets – Notes for Collaborators
Related Dataset	The Australian Longitudinal Study on Women’s Health Datasets
Other Reference	Dobson AJ, Hockey R, Brown WJ, Byles JE, Loxton DJ, McLaughlin D, Tooth LR, Mishra GM. Cohort Profile Update: Australian Longitudinal Study on Women’s Health, International Journal of Epidemiology, 44 (5), 2015, 1547–1547, https://doi.org/10.1093/ije/dyv110

Geospatial Metadata

Geographic Coverage	Australia
Geographic Unit	State

Social Science and Humanities Metadata

Unit of Analysis	Individual
Universe	Women in Australia aged 34-39 years in 2012
Time Method	Longitudinal/panel/cohort study
Collector Training	In-house training
Sampling Procedure	One-stage stratified or systematic random sample
Collection Mode	Mail questionnaire or online questionnaire Telephone interview (very small number of these)
Type of Research Instrument	Structured
Characteristics of Data Collection Situation	Available in ALSWH Technical Reports.
Weighting	Data files are unweighted. Weighting variables are included.
Cleaning Operations	Random checks were conducted on the data by the archive for missing variable and value labels, out of range values and wild codes, logical inconsistencies, and confidentiality.
Response Rate	For information on response rates go to: ALSWH Sample.

Dataset Terms

License/Data Use Agreement

Our Community Norms as well as good scientific practices expect that proper credit is given via citation. Please use the data citation shown on the dataset page.

Custom Dataset Terms — the following Custom Dataset Terms have been defined for this dataset.

The Australian Longitudinal Study on Women’s Health (ALSWH) requires users of Study data to comply with the following Terms and Conditions of Use:

1. STORAGE:
• All copies of the ALSWH Datasets, whether full or partial, must be stored securely and protected by the use of firewalls, automatic screen locking and/or secure encrypted pathways.
• All copies of any ALSWH Dataset no longer needed must be destroyed.
• The authorised user is responsible for the ALSWH Datasets until all copies in their control have been destroyed AND ALSWH has been informed of their destruction.

2. ANALYSIS:
Data analysis must be conducted according to recognised standards. Authorised users should familiarise themselves with the datasets, the ‘Notes for Collaborators using ALSWH Data’, the Data Dictionary, and the Data Dictionary Supplement, all of which are available from: https://dataverse.ada.edu.au/dataverse/alswh_core_release.

3. USAGE:
• Commercial use of ALSWH data is not permitted.
• No attempt must be made to identify individuals in any Dataset.
• If spontaneous recognition occurs, the identity of any person within the Dataset must not be shared.
• Unit record data must not be shared with anyone who is not an authorised user of the same Dataset, with authorised users being only those researchers listed on the approved application.
• The ALSWH Dataset must not be matched, shared, linked, integrated or merged with other Datasets.

4. PUBLICATION:
• All details of published or finalised research must be provided to ALSWH by email (alswh@uq.edu.au).
• Any Unit Record Data or any research material that could lead to respondent identification must not be published.
• The appropriate Dataset acknowledgement must be included in all research materials.
• ALSWH will supply details (names and institutions only) of all approved data users to the Human Research Ethics Committee with oversight of the Study. These details will also be listed in the ALSWH Annual Report.

5. NOTIFICATION:
Notify ALSWH by email (alswh@uq.edu.au) in the following cases:
• Change of personal details, including institutional affiliation
• Change or addition to intended research
• Change in expected completion date of research
• Terminating access to the Dataset
• Loss of the data or other potential breaches
• You are required by law to surrender the data to a third party
• You have destroyed the data at the completion of your research.

6. CITATIONS:
Under the Terms and Conditions of Use, Authorised Users have agreed to acknowledge the Australian Longitudinal Study on Women’s Health and the Australian Government Department of Health and Aged Care in all Research material. If you have used ALSWH data in your research, you must include the relevant data release DOI (obtainable from Dataverse) and the following paragraph:

Data from the Australian Longitudinal Study on Women’s Health (ALSWH), conducted by the University of Queensland and the University of Newcastle, was used in this (paper, abstract, report, etc.). We are grateful to the Australian Government Department of Health and Aged Care for funding ALSWH and to the women who provided the survey data.

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License/Data Use Agreement

Our Community Norms as well as good scientific practices expect that proper credit is given via citation. Please use the data citation shown on the dataset page.

Custom terms specific to this dataset Custom Dataset Terms — the following Custom Dataset Terms have been defined for this dataset.

Terms of Use The Australian Longitudinal Study on Women’s Health (ALSWH) requires users of Study data to comply with the following Terms and Conditions of Use:

1. STORAGE:
• All copies of the ALSWH Datasets, whether full or partial, must be stored securely and protected by the use of firewalls, automatic screen locking and/or secure encrypted pathways.
• All copies of any ALSWH Dataset no longer needed must be destroyed.
• The authorised user is responsible for the ALSWH Datasets until all copies in their control have been destroyed AND ALSWH has been informed of their destruction.

2. ANALYSIS:
Data analysis must be conducted according to recognised standards. Authorised users should familiarise themselves with the datasets, the ‘Notes for Collaborators using ALSWH Data’, the Data Dictionary, and the Data Dictionary Supplement, all of which are available from: https://dataverse.ada.edu.au/dataverse/alswh_core_release.

3. USAGE:
• Commercial use of ALSWH data is not permitted.
• No attempt must be made to identify individuals in any Dataset.
• If spontaneous recognition occurs, the identity of any person within the Dataset must not be shared.
• Unit record data must not be shared with anyone who is not an authorised user of the same Dataset, with authorised users being only those researchers listed on the approved application.
• The ALSWH Dataset must not be matched, shared, linked, integrated or merged with other Datasets.

4. PUBLICATION:
• All details of published or finalised research must be provided to ALSWH by email (alswh@uq.edu.au).
• Any Unit Record Data or any research material that could lead to respondent identification must not be published.
• The appropriate Dataset acknowledgement must be included in all research materials.
• ALSWH will supply details (names and institutions only) of all approved data users to the Human Research Ethics Committee with oversight of the Study. These details will also be listed in the ALSWH Annual Report.

5. NOTIFICATION:
Notify ALSWH by email (alswh@uq.edu.au) in the following cases:
• Change of personal details, including institutional affiliation
• Change or addition to intended research
• Change in expected completion date of research
• Terminating access to the Dataset
• Loss of the data or other potential breaches
• You are required by law to surrender the data to a third party
• You have destroyed the data at the completion of your research.

6. CITATIONS:
Under the Terms and Conditions of Use, Authorised Users have agreed to acknowledge the Australian Longitudinal Study on Women’s Health and the Australian Government Department of Health and Aged Care in all Research material. If you have used ALSWH data in your research, you must include the relevant data release DOI (obtainable from Dataverse) and the following paragraph:

Data from the Australian Longitudinal Study on Women’s Health (ALSWH), conducted by the University of Queensland and the University of Newcastle, was used in this (paper, abstract, report, etc.). We are grateful to the Australian Government Department of Health and Aged Care for funding ALSWH and to the women who provided the survey data.

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Please outline your skills and experience (including qualifications)

Please provide details of any of your collaborators on this project. For each collaborator, please include their title and name, institution, institutional email address and skills and experience, including qualifications.

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What is the title of your project?

Please provide a brief (no more than 500 words) summary of the project, including details of the intended analysis plan and to demonstrate familiarity with ALSWH core datasets, include which variables will be used.

What are the expected outcomes (eg. paper to be submitted to a peer reviewed journal; teaching materials)

What is the start date for the project?

What is the expected completion date for the project?

Please indicate which datasets you would like to request: A. Women born 1921-26 Includes Main Surveys 1-6

B. Women born 1946-51: Includes Main Surveys 1-9

C. Women born 1973-78: Includes Main Surveys 1-8

D. Women born 1989-95: Includes Main Surveys 1-6

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